PHACE syndrome

PHACE syndrome is a cutaneous condition characterized by multiple congenital abnormalities. The mnemonic PHACE stands for Posterior fossa brain malformations, Hemangioma, Arterial lesions, Cardiac abnormalities, and Eye abnormalities.PHACE syndrome should be considered in infants with large plaque-type facial hemangiomas. [Source: Wikipedia ]

OrphaNet reference
PHACE syndrome 
May Cause
Marfanoid appearance